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Publication
Perspectiva da pessoa com demĂȘncia acerca da sua qualidade de vida
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Advisor(s)
Abstract(s)
Objectivos: avaliar a percepção de pessoas com demĂȘncia acerca da sua qualidade de
vida; saber que domĂnios desta consideram importantes.
A investigação compreendeu uma anĂĄlise estatĂstica descritiva dos valores de qualidade
de vida e um estudo de caso descritivo de estrutura analĂtica linear relativo aos domĂnios da
qualidade de vida considerados importantes por uma amostra acidental de 12 pessoas com
o diagnóstico de Alzheimer ligeira a severa, residentes em casa ou em instituiçÔes.
Instrumentos: um questionĂĄrio sobre dados sĂłcio demogrĂĄficos, que contemplou um
grupo de questÔes sobre os dados das pessoas e um grupo de questÔes abertas; e a escala
SF-36.
ConclusĂ”es: as pessoas com demĂȘncia demonstraram ter uma percepção da sua
qualidade de vida relativamente boa em alguns aspectos; as pessoas com demĂȘncia ligeira,
moderada e severa, residentes em lares e instituiçÔes de terceira idade consideraram
diversos e diferentes domĂnios na avaliação da sua qualidade de vida, que sĂŁo referidos em
diversos estudos e instrumentos, realçando a importùncia da opinião da pessoa com
demĂȘncia acerca da sua qualidade de vida.
Este estudo suscita questÔes acerca da relevùncia da perspectiva destas pessoas
sobre a sua qualidade de vida. Seria interessante realizar um estudo nas diversas regiÔes
do paĂs, de forma a recolher informação pertinente para o desenvolvimento de intervençÔes
apropriadas Ă s diferentes caracterĂsticas, necessidades e interesses.
Objectives: to study the perceptions of people with dementia about their quality of life and the domains considered important by them. This investigation involved a descriptive analysis of quality of life values and a descriptive case study with a linear-analytic structure about the domains of quality of life considered important by an accidental sample of 12 people with mild to severe Alzheimerâs diagnostic, living at home or in institutions. Instruments: a socio-demographic questionnaire that includes a group of questions about the interviewed data and a group of open questions; and the SF-36 Scale. Conclusions: the group of people with dementia interviewed showed a relatively good perception of their quality of life in some aspects; people with mild, moderate and severe dementia considered various and different domains in their assessment of quality of life, and those domains are represented in different studies and measuring instruments, suggesting the importance of the personsâ own perspective about his/hers quality of life. This study raises questions concerning the relevance of the perspective of people with dementia about their quality of life. It would be interesting to conduct a study with a superior number of people in all the different regions of the country, collecting pertinent information for the development of appropriate interventions that attend to different characteristics, needs and interests.
Objectives: to study the perceptions of people with dementia about their quality of life and the domains considered important by them. This investigation involved a descriptive analysis of quality of life values and a descriptive case study with a linear-analytic structure about the domains of quality of life considered important by an accidental sample of 12 people with mild to severe Alzheimerâs diagnostic, living at home or in institutions. Instruments: a socio-demographic questionnaire that includes a group of questions about the interviewed data and a group of open questions; and the SF-36 Scale. Conclusions: the group of people with dementia interviewed showed a relatively good perception of their quality of life in some aspects; people with mild, moderate and severe dementia considered various and different domains in their assessment of quality of life, and those domains are represented in different studies and measuring instruments, suggesting the importance of the personsâ own perspective about his/hers quality of life. This study raises questions concerning the relevance of the perspective of people with dementia about their quality of life. It would be interesting to conduct a study with a superior number of people in all the different regions of the country, collecting pertinent information for the development of appropriate interventions that attend to different characteristics, needs and interests.
Description
Dissertação de Mestrado apresentada ao Instituto Superior de Psicologia Aplicada para obtenção de grau de Mestre na especialidade de Psicologia ClĂnica.
Keywords
DemĂȘncia Qualidade de vida Dementia Quality of life