A carregar...
Publicação
Histórias que contam: A experiência de vida de adultos com dificuldade intelectual
| Nome: | Descrição: | Tamanho: | Formato: | |
|---|---|---|---|---|
| 19.77 MB | Adobe PDF |
Autores
Orientador(es)
Resumo(s)
Enquadramento: Observa-se pouca evidência que sustente a participação de adultos com Dificuldade Intelectual no processo de produção de conhecimento, no que se refere à identificação dos seus desafios, necessidades, defesa dos seus direitos e construção de
práticas que promovam a sua inclusão. Assim, surge a necessidade de desenvolver investigações que tenham como princípio a escuta e a construção de respostas mais ajustadas e humanizadas às suas vivências, contribuindo para a compreensão aprofundada e integrada da Dificuldade Intelectual. Objetivo: O objetivo central da presente
investigação consiste em refletir sobre a experiência vivida e documentada por adultos diagnosticados com Dificuldade Intelectual, através do contacto com as suas histórias e de modo a compreender as necessidades face aos desafios, perspetivas e sentimentos associados à sua experiência de vida. Método: O presente estudo de natureza qualitativa, contou com a participação de 5 adultos com um diagnóstico de Dificuldade Intelectual,
com idades compreendidas entre os 25 e os 61 anos, através da realização de entrevistas abertas para a composição de narrativas como dado para o desenvolvimento de uma análise temática reflexiva. Resultados: A recolha e análise dos dados resultou em quatro relevantes temas, entre eles, os Desafios à Igualdade de Oportunidades de Emprego, a Vida Independente como Expressão de Autodeterminação, o Desenvolvimento de Relacionamentos Interpessoais e a Participação Social e o Voluntariado enquanto Prática Inclusiva. Conclusão: Evidencia-se que a experiência de vida dos participantes é marcada por barreiras que dificultam a sua autodeterminação para atingir uma vida independente com os mesmos direitos e oportunidades de emprego, o desenvolvimento de relacionamentos interpessoais e a participação ativa na sociedade. Como resposta, o foco deve descentrar-se das dificuldades individuais e focar-se na qualidade de interação entre a pessoa e o seu desenvolvimento.
Background: There is limited evidence supporting the involvement of adults with Intellectual Disability in the knowledge production process, particularly regarding the identification of their challenges, needs, the defense of their rights, and the development of practices that promote their inclusion. In this context, there is a clear need to conduct research grounded in active listening, aimed at building more tailored and humanized responses to their lived experiences, contributing to a deeper and more integrated understanding of Intellectual Disability. Goals: The main objective of this study is to reflect on the lived and documented experiences of adults diagnosed with Intellectual Disability, by engaging with their stories and perspectives to gain a first-hand insight into the needs, expectations, and emotions linked to their challenges and associated with their life experience. Method: The study involved five adults diagnosed with Intellectual Disability, aged between 25 and 61 years, who participated in open-ended interviews to produce narratives, which served as the basis for a reflexive thematic analysis. Results: The collection and analysis of the data led to the identification of four key subjects, namely, Challenges to Equal Employment Opportunities, independent Living as an Expression of Self-Determination, The Development of Interpersonal Relationships, and Social Participation and Volunteering as Practice of Inclusion. Conclusion: The findings highlight that the participants’ life experiences are shaped by barriers that limit their self determination in achieving an independent life with equal rights and employment opportunities, the development of interpersonal relationships and active participation in society. In response, the focus should shift away from individual difficulties and redirect toward the quality of interaction between the person and their environment.
Background: There is limited evidence supporting the involvement of adults with Intellectual Disability in the knowledge production process, particularly regarding the identification of their challenges, needs, the defense of their rights, and the development of practices that promote their inclusion. In this context, there is a clear need to conduct research grounded in active listening, aimed at building more tailored and humanized responses to their lived experiences, contributing to a deeper and more integrated understanding of Intellectual Disability. Goals: The main objective of this study is to reflect on the lived and documented experiences of adults diagnosed with Intellectual Disability, by engaging with their stories and perspectives to gain a first-hand insight into the needs, expectations, and emotions linked to their challenges and associated with their life experience. Method: The study involved five adults diagnosed with Intellectual Disability, aged between 25 and 61 years, who participated in open-ended interviews to produce narratives, which served as the basis for a reflexive thematic analysis. Results: The collection and analysis of the data led to the identification of four key subjects, namely, Challenges to Equal Employment Opportunities, independent Living as an Expression of Self-Determination, The Development of Interpersonal Relationships, and Social Participation and Volunteering as Practice of Inclusion. Conclusion: The findings highlight that the participants’ life experiences are shaped by barriers that limit their self determination in achieving an independent life with equal rights and employment opportunities, the development of interpersonal relationships and active participation in society. In response, the focus should shift away from individual difficulties and redirect toward the quality of interaction between the person and their environment.
Descrição
Dissertação de Mestrado apresentada no Ispa – Instituto Universitário para obtenção de grau de Mestre na especialidade de Psicologia Clínica
Palavras-chave
Dificuldade intelectual Experiência vivida Análise temática reflexiva Entrevistas abertas Narrativas Intellectual Disability – Lived Experience – Reflexive Thematic Analysis – Open-ended Interviews –Narratives Intellectual Disability – Lived Experience – Reflexive Thematic Analysis – Open-ended Interviews –Narratives