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- Cross-cultural adaptation and psychometric evaluation of the perceived ability to cope with trauma scale in portuguese patients with breast cancerPublication . Lemos, Raquel; Costa, Beatriz; Frasquilho, Diana; Almeida, Sílvia; Sousa, Berta; Maia, Albino J. Oliveira
- Parental unemployment and youth life satisfaction: The moderating roles of satisfaction with family lifePublication . Frasquilho, Diana; Matos, Margarida Gaspar de; Neville, Fergus G.; Gaspar, Tania; Almeida, José Miguel Caldas deAbstract While Europe is slowly recovering from the economic recession, its effects on labour markets are still visible. The number of jobless families has increased and previous research has shown that unemployment can affect the wellbeing of both parents and their children. In this study we explored the links between parental unemployment and youth life satisfaction by considering the potential moderating roles played by satisfaction with family life and perceived family wealth. We used descriptive statistics, correlations, simple moderation and moderated moderation models of regression on data from a representative sample of 3937 Portuguese students (Mage = 13.9 years; SD ± 1.7; 48 % boys). Results showed that the negative effects of parental unemployment on youth life satisfaction were moderated by youth perceived satisfaction with family life but not by perceived wealth. This suggested that during family unemployment, young people satisfied with their family life are less vulnerable to the negative effects of parental unemployment on their life satisfaction. The relationship between parental unemployment and youth well-being requires further research, especially during periods of labour market crisis.
- Cross-cultural adaptation and psychometric evaluation of the Portuguese version of the family resilience questionnaire – short form (FaRE-SF-P) in women with breast cancerPublication . Almeida, Sílvia; Rodrigues da Silva, Daniel; Frasquilho, Diana; Costa, Beatriz; Sousa, Berta; Baptista, Telmo Mourinho; Grácio, Jaime; Lemos, Raquel; Oliveira-Maia, Albino J.Background: A diagnosis of cancer, and the resulting treatment process, can be perceived as a life-threatening event, affecting not only patients but also their social network and, more specifically, their relatives. While the ability to cope and adjust to difficult health situations may be challenging, family resilience may optimize a positive adaptation to adversity and contribute to enhance the patient’s quality of life. The Family Resilience Questionnaire (FaRE) is a self-report measure of family resilience that assesses this construct systematically. We aimed to validate the Portuguese version of a short form of the FaRE (FaRE-SF-P) in a sample of women with breast cancer. Methods: 147 women recently diagnosed with early breast cancer were recruited at the Champalimaud Clinical Centre in Lisbon. Participants completed psychometric assessment including the Portuguese version of the FaRE-SF-P, composed by two subscales of the original version – the FaRE Perceived Family Coping (FaRE-PFC) and the FaRE Communication and Cohesion (FaRE-CC). Confirmatory factor analysis (CFA) was performed to assess the factor structure of the FaRE-SF-P. Construct validity was assessed using the Hospital Anxiety and Depression Scale (HADS) for divergent validity, and the Modified Medical Outcomes Study Social Support Survey (mMOSSS) as well as the social functioning subscale from the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire-Core 30 (EORTC QLQ-C30) for convergent validity. Results: The CFA results confirmed a correlated two-factor structure model consistent with the Perceived Family Coping and the Communication and Cohesion subscales. Internal consistency reliability indicated good values both for Perceived Family Coping and Communication and Cohesion subscales. The results for construct validity showed acceptable convergent and divergent validity. Discussion: The FaRE-SF-P showed good psychometric properties demonstrating to be a valid and reliable family resilience measure to use in Portuguese women diagnosed with breast cancer. Since FaRE-SF-P is a short instrument it may be a useful screening tool in an oncological clinical practice routine
- Predicting effective adaptation to breast cancer to help women BOUNCE back: Protocol for a Multicenter Clinical Pilot StudyPublication . Pettini, Greta; Sanchini, Virginia; Pat-Horenczyk, Ruth; Sousa, Berta; Masiero, Marianna; Marzorati, Chiara; Galimberti, Viviana Enrica; Munzone, Elisabetta; Mattson, Johanna; Vehmanen, Leena; Utriainen, Meri; Roziner, Ilan; Lemos, Raquel; Frasquilho, Diana; Cardoso, Fatima; Oliveira-Maia, Albino J; Kolokotroni, Eleni; Stamatakos, Georgios; Leskelä, Riikka-Leena; Haavisto, Ira; Salonen, Juha; Richter, Robert; Karademas, Evangelos; Poikonen-Saksela, Paula; Mazzocco, KettiBackground: Despite the continued progress of medicine, dealing with breast cancer is becoming a major socioeconomic challenge, particularly due to its increasing incidence. The ability to better manage and adapt to the entire care process depends not only on the type of cancer but also on the patient’s sociodemographic and psychological characteristics as well as on the social environment in which a person lives and interacts. Therefore, it is important to understand which factors may contribute to successful adaptation to breast cancer. To our knowledge, no studies have been performed on the combination effect of multiple psychological, biological, and functional variables in predicting the patient’s ability to bounce back from a stressful life event, such as a breast cancer diagnosis. Here we describe the study protocol of a multicenter clinical study entitled “Predicting Effective Adaptation to Breast Cancer to Help Women to BOUNCE Back” or, in short, BOUNCE. Objective: The aim of the study is to build a quantitative mathematical model of factors associated with the capacity for optimal adjustment to cancer and to study resilience through the cancer continuum in a population of patients with breast cancer. Methods: A total of 660 women with breast cancer will be recruited from five European cancer centers in Italy, Finland, Israel, and Portugal. Biomedical and psychosocial variables will be collected using the Noona Healthcare platform. Psychosocial, sociodemographic, lifestyle, and clinical variables will be measured every 3 months, starting from presurgery assessment (ie, baseline) to 18 months after surgery. Temporal data mining, time-series prediction, sequence classification methods, clustering time-series data, and temporal association rules will be used to develop the predictive model. Results: The recruitment process stared in January 2019 and ended in November 2021. Preliminary results have been published in a scientific journal and are available for consultation on the BOUNCE project website. Data analysis and dissemination of the study results will be performed in 2022. Conclusions: This study will develop a predictive model that is able to describe individual resilience and identify different resilience trajectories along the care process. The results will allow the implementation of tailored interventions according to patients’ needs, supported by eHealth technologies. Trial Registration: ClinicalTrials.gov NCT05095675; https://clinicaltrials.gov/ct2/show/NCT05095675 International Registered Report Identifier (IRRID): DERR1-10.2196/34564
- Factors affecting the well-being of adolescents living with unemployed parents in times of economic recession: Findings from the portuguese HBSC studyPublication . Frasquilho, Diana; Matos, Margarida Gaspar de; Marques, Adilson; Gaspar, Tania; Almeida, José Miguel Caldas deObjectives: Using a national representative sample of adolescents with unemployed parents, this study examined which factors (sociodemographic and of satisfaction with family life and peers) are related to the negative effect of parents' unemployment on emotional well-being. Study design: Cross-sectional survey study. Methods: Data on adolescents (14.1 ± 1.7 years old), with at least one parent unemployed (n ¼ 1311, 53.2% girls), was provided by the Portuguese Health Behaviour in School-aged Children study. Descriptive statistics and logistic regression analyses were performed. Results: A high proportion of adolescents reported being emotionally affected by father's unemployment but not by their mother's. Older boys and older girls were more likely to report that their same-gender parent's unemployment situation (sons-fathers and daughters-mothers) has had a negative effect on their well-being. Girls from low socioeconomic status and with poor family satisfaction were more likely to report negative emotional well-being related to parental unemployment. Conclusions: This study presents evidence on factors that can shape adolescents' emotional well-being related to parents' unemployment situation. Given the recessionary context and high unemployment rates, these insights are valuable to assist the design of an action to improve the levels of well-being of Portuguese adolescents from unemployed families.
- Unemployment as a source of mental distress to individuals and their family: Unemployed parents perceptions during the economic recessionPublication . Frasquilho, Diana; Matos, Margarida Gaspar de; Santos, Teresa Cristina; Gaspar, Tania; Almeida, José Miguel Caldas deBackground: Due to the economic recession, several people in Europe became unemployed. This situation may risk their mental health. Aim: This study explored parents’ perceptions about their unemployment’s effects in daily life during the recession. Methods: A total of 59 unemployed parents (40.7% fathers and 59.3% mothers), ageing 44.4 years (±6.2), answer a question on how the unemployment affected their family lives. Thematic analysis was used to analyse data. Results: The findings suggest that unemployment is a source of adult and youth mental distress and of economic hardship and changes in family relations. Conclusion: Support to unemployed individuals and their families could benefit from these insights when granting the needed financial and socioemotional assistance.
- Dream teens: Adolescents-led participatory project in Portugal in the context of the economic recessionPublication . Frasquilho, Diana; Ozer, Emily J.; Ozer, Elizabeth M.; Branquinho, Cátia; Camacho, Inês; Reis, Marta; Tomé, Gina; Santos, Teresa Cristina; Gomes, Paulo; Cruz, Jaqueline; Ramiro, Lúcia; Gaspar, Tania; Simões, Celeste; Piatt, Amber Akemi; Holsen, Ingrid; Matos, Margarida Gaspar deThis article describes the implementation process of a nationwide project to enhance young people's participation and active citizenship in the context of Portugal's economic recession. This project used an innovative Positive Youth Development approach that engaged Portuguese youth (aged 11-18 years) through social media tools to facilitate their civic engagement and development. Participants from all over the country were empowered (1) to design and conduct research activities on topics of their choice and about their life contexts and (2) to create ways to improve youth civic participation in their communities, while developing supportive interactions with adults and peers. Overall, youth were engaged in their activities, felt their voices were heard, and felt that they were viewed as experts of their own well-being and living contexts. Youth research actions and preliminary findings were then compiled in a set of recommendations that was formally received by a high commissioner of the Ministry of Health. The article concludes with a discussion of the next steps for the project and its limitations so far.