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Publication
O autismo e o seu impacto na família
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Advisor(s)
Abstract(s)
Objetivo: conhecer a experiência dos pais de crianças com Perturbação Autística e o seu
impacto na dinâmica familiar à luz da fenomenologia descritiva, recorrendo à analise de
entrevistas apoiadas no método de Amedeo Giorgi.
Método: Foi realizado um estudo qualitativo, recorrendo à análise de entrevistas de
investigação realizadas a mães e pais de crianças com Perturbação Autística, baseadas no
método fenomenológico de fenomenologia descritiva de Giorgi. No início de cada entrevista
foi preenchida uma “Ficha de Dados Sociodemográficos e Clínicos” passando seguidamente
para a realização das entrevistas. A entrevista deve refletir uma descrição tão completa quanto
possível da experiencia vivida dos participantes sobre um determinado fenómeno de estudo.
Resultados: Numa estrutura comum, foram encontrados como principais impactos nas
famílias observadas, o comportamento manifestado que se prende com a expectativa parental,
decorrente das circunstancias da experiência, a vulnerabilidade emocional, marcadamente
presente no recebimento do diagnóstico, projeções de futuro baseadas nas preocupações dos
pais relativamente aos seus filhos, redução ou isolamento social da família, impacto
financeiro, medo da recorrência da patologia noutros filhos, repercussões no relacionamento
do casal e perceção dos pais da experiencia dos irmãos.
Conclusões: existem marcadas evidências que comprovam que ter um filho com diagnóstico
de Perturbação do Espectro do Autismo incita na família um grande desgaste emocional e
altera em grande parte a dinâmica familiar.
ABSTRACT: Objective: to know the feelings and emotions of parents of children with Autistic Disorder and its impact on family dynamics in the light of the descriptive phenomenology, drawing on analysis of interviews supported the method of Amedeo Giorgi. Method: we conducted a qualitative study, using the analysis of interviews conducted research mothers and fathers of children with Autistic Disorder, based on the phenomenological method of descriptive phenomenology of Giorgi. At the beginning of each interview was completed a “Form demographic and clinical data” then going to the interviews. The interview should reflect a description as complete as possible of the lived experience of participants on a particular phenomenon of study. Results: In a common structure, were found as major impacts on families observed the behavior manifested which relates to parental expectations, due to the circumstances of the experience, emotional vulnerability, markedly present in receiving the diagnosis, based on projections of future concerns parents for their children, reducing social isolation or family, financial impact, fear of disease recurrence in other children, repercussions on the couple relationship and parent perception of the experience of siblings. Conclusions: there are important evidence proving that having a child diagnosed with Autism Spectrum Disorder in the family calls a great emotional distress and changes in large part to family dynamics.
ABSTRACT: Objective: to know the feelings and emotions of parents of children with Autistic Disorder and its impact on family dynamics in the light of the descriptive phenomenology, drawing on analysis of interviews supported the method of Amedeo Giorgi. Method: we conducted a qualitative study, using the analysis of interviews conducted research mothers and fathers of children with Autistic Disorder, based on the phenomenological method of descriptive phenomenology of Giorgi. At the beginning of each interview was completed a “Form demographic and clinical data” then going to the interviews. The interview should reflect a description as complete as possible of the lived experience of participants on a particular phenomenon of study. Results: In a common structure, were found as major impacts on families observed the behavior manifested which relates to parental expectations, due to the circumstances of the experience, emotional vulnerability, markedly present in receiving the diagnosis, based on projections of future concerns parents for their children, reducing social isolation or family, financial impact, fear of disease recurrence in other children, repercussions on the couple relationship and parent perception of the experience of siblings. Conclusions: there are important evidence proving that having a child diagnosed with Autism Spectrum Disorder in the family calls a great emotional distress and changes in large part to family dynamics.
Description
Dissertação de Mestrado apresentada ao ISPA - Instituto Universitário
Keywords
Autismo Impactos Família Stress Autism Impacts Family Stress