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Publication
Sofrimento e suporte social da pessoa com fibrose quística
Advisor(s)
Abstract(s)
A Fibrose Quística é uma doença hereditária, até ao momento incurável. O objectivo deste estudo consiste em avaliar o sofrimento da pessoa com Fibrose Quística, em função do seu suporte social. Aplicaram-se a 23 participantes o Inventário de Experiências Subjectivas de Sofrimento na Doença (IESSD) e o questionário de Suporte Social (SSQ). Os resultados evidenciam maior sofrimento nas dimensões "sócio-relacional" e "psicológica", satisfação com o suporte social e uma associação positiva entre esta variável e as experiências subjectivas de sofrimento, no sentido de que quanto maior o número de pessoas de suporte, menor o sofrimento nas sub-dimensões "alterações emocionais" e "limitações do projecto futuro". Concluimos ser importante um bom suporte social, de forma a diminuir o sofrimento e melhorar as condições de vida da pessoa com fibrose quística.
ABSTRACT: Cystic fibrosis is a hereditary disease, so far incurable. The aim of this study is to evaluate the suffering of the person with cystic fibrosis, depending on their social support. Inventory of Subjective Suffering Experiences in Illness (ISSEI) and the Social Support Questionnaire (SSQ) were applied to 23 participants. Results showed higher distress in "social-relational" and "psychological" dimensions, satisfaction with social support and a positive association between this variable and subjective distress experiences, in the sense that the greater the number of support people, the less painful “emotional changes" and "future project limitations" sub-dimensions. We conclude that a good social support is important, so as to reduce the suffering and improve the life conditions of the person with cystic fibrosis.
ABSTRACT: Cystic fibrosis is a hereditary disease, so far incurable. The aim of this study is to evaluate the suffering of the person with cystic fibrosis, depending on their social support. Inventory of Subjective Suffering Experiences in Illness (ISSEI) and the Social Support Questionnaire (SSQ) were applied to 23 participants. Results showed higher distress in "social-relational" and "psychological" dimensions, satisfaction with social support and a positive association between this variable and subjective distress experiences, in the sense that the greater the number of support people, the less painful “emotional changes" and "future project limitations" sub-dimensions. We conclude that a good social support is important, so as to reduce the suffering and improve the life conditions of the person with cystic fibrosis.
Description
Dissertação de Mestrado em Psicologia Clínica, apresentada ao ISPA - Instituto Universitário
Keywords
Fibrose quística Suporte social Sofrimento Apoio Cystic fibrosis Social support Grief Support