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Publication
Pertubação de Luto Prolongado dos Cuidadores Familiares em Cuidados Paliativos: Análise Comparativa dos Sintomas Pré e Pós-Morte
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| 1.38 MB | Adobe PDF |
Advisor(s)
Abstract(s)
Enquadramento: O luto dos cuidadores tem sido concetualizado como um processo contínuo
que tem início na fase que antecede a morte do doente. No entanto, esta visão não permite
compreender as diferenças entre a experiência de luto pré e pós-morte. Objetivo: Estabelecer
uma análise comparativa nas manifestações de Perturbação de Luto Prolongado (PLP) e
sintomatologia geral de Depressão, Ansiedade e Somatização na fase pré e pós-morte nos
cuidadores familiares (CF) de doentes em Cuidados Paliativos (CP), assim como analisar
diferenças em função das características sociodemográficas. Método: Trata-se de um estudo
coorte, de desenho longitudinal e prospetivo, com uma amostra de 70 CF de doentes em CP
acompanhados na Unidade de Medicina Paliativa do Centro Hospitalar Lisboa Norte. Os dados
foram recolhidos na fase anterior à morte (T0) e mais de 6 meses após o óbito (T1) através da
aplicação dos instrumentos PG-12; PG-13 e subescalas do BSI, validados para a população
portuguesa. Resultados: Verificou-se manifestações de PLP de maior intensidade no momento
pré-morte, nomeadamente: dor emocional; estar emocionalmente entorpecido; sentir-se
confuso e em choque; dificuldade em aceitar a doença e em continuar com a vida. Quanto à
sintomatologia geral, a ansiedade também manifestou prevalência na fase pré-morte. Somente
o baixo nível de escolaridade apresentou diferenças significativas na sintomatologia depressiva
e ansiosa no pós-morte.
ABSTRACT: Background: Caregivers' grief was conceived as a continuous process that begins in the phase preceding the patient's death. However, this view does not allow us to understand the differences between the pre and post-death grief experience. Aim: Establish a comparative analysis of the manifestations of Prolonged Grief Disorder (PGD) and general symptoms of Depression, Anxiety and Somatization in the pre and post-death phase in family caregivers (FC) of patients in Palliative Care (PC), as well as analyzing differences depending on sociodemographic characteristics. Method: This is a cohort study, with a longitudinal and prospective design, with a sample of 70 FC to patients at PC followed at the Palliative Medicine Unit of the Centro Hospitalar Lisboa Norte. Data were collected in the phase before death (T0) and more than 6 months after death (T1) through the application of the instruments PG-12; PG 13 and BSI subscales, validated for the Portuguese population. Results: There were manifestations of greater intensity in the pre-death, namely: emotional pain; being emotionally numb; feeling confused and in shock; difficulty accepting the illness and continuing with life. As for general symptoms, anxiety was also prevalent in the pre-death phase. Only the low level of education showed significant differences in depressive and anxious symptoms in post-death.
ABSTRACT: Background: Caregivers' grief was conceived as a continuous process that begins in the phase preceding the patient's death. However, this view does not allow us to understand the differences between the pre and post-death grief experience. Aim: Establish a comparative analysis of the manifestations of Prolonged Grief Disorder (PGD) and general symptoms of Depression, Anxiety and Somatization in the pre and post-death phase in family caregivers (FC) of patients in Palliative Care (PC), as well as analyzing differences depending on sociodemographic characteristics. Method: This is a cohort study, with a longitudinal and prospective design, with a sample of 70 FC to patients at PC followed at the Palliative Medicine Unit of the Centro Hospitalar Lisboa Norte. Data were collected in the phase before death (T0) and more than 6 months after death (T1) through the application of the instruments PG-12; PG 13 and BSI subscales, validated for the Portuguese population. Results: There were manifestations of greater intensity in the pre-death, namely: emotional pain; being emotionally numb; feeling confused and in shock; difficulty accepting the illness and continuing with life. As for general symptoms, anxiety was also prevalent in the pre-death phase. Only the low level of education showed significant differences in depressive and anxious symptoms in post-death.
Description
Dissertação de Mestrado realizada sob a
orientação da Professora Doutora Alexandra
Coelho, apresentada no Ispa – Instituto
Universitário para obtenção do grau de Mestre na
especialidade de Psicologia Clínica.
Keywords
Luto Pré-morte Luto Pós-morte Perturbação de Luto Prolongado Sintomas Cuidadores Familiares Cuidados Paliativos Pre-death Grief Post-death Grief Prolonged Grief Disorder Symptoms Family Caregivers Palliative Care