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Coping e sobrecarga nos cuidadores informais de pessoas com doença de Alzheimer
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Abstract(s)
O objectivo deste estudo foi o de conhecer as relações existentes entre as estratégias de
coping utilizadas pelos cuidadores informais de pessoas com Alzheimer e o nível de
sobrecarga experienciado pelos mesmos. Foram inquiridos 62 cuidadores informais, 32
do sexo feminino e 30 do sexo masculino. A média de idades é 49,89 e desvio-padrão
20,25.
Foi utilizado um questionário sócio-demográfico, e também o Índice de Barthel
(Mahoney & Barthel, 1965) para medir o grau de dependência da pessoa com doença de
Alzheimer, o Questionário de Avaliação da Sobrecarga do Cuidador Informal (Martins,
Ribeiro & Garrett, 2003) para medir o nível de sobrecarga, e o Brief COPE (Carver,
1997) para medir as estratégias de coping mais frequentemente utilizadas.
Quanto aos resultados obtidos, existe uma correlação directa entre a estratégia de
coping Desinvestimento Comportamental e a Sobrecarga Financeira, e ainda com a
subescala Implicações na Vida Pessoal. A estratégia mais utilizada pelos cuidadores
inquiridos é a Reinterpretação Positiva (M= 3,56) e a menos frequente é a Uso de
Substâncias (M= 1,19). Os cuidadores que mais utilizam a Reinterpretação Positiva são
os que são cuidadores há menos tempo. Não existem elevados níveis de sobrecarga nos
cuidadores inquiridos.
Conclui-se que os cuidadores que têm mais dificuldades económicas desistem mais
rapidamente de melhorar a sua situação, e também aqueles cujas vidas e planos mais
foram alterados pela situação, são mais propensos a desistir dos seus planos e
objectivos. Os que se tornaram cuidadores mais recentemente têm mais facilidade em
lidar com a situação, pelo que a duração do cuidado parece ter um papel importante na
sobrecarga experienciada.
ABSTRACT: The objective of this study is to know the relationships between the coping strategies the informal caregivers of people with Alzheimer’s Disease use and the level of burden they experience. A sample of 62 caregivers was questioned, 32 were females and 30 were males. The average of ages is 49.89 and SD is 20.25. A social demographic questionnaire was used, the Barthel Index )Mahoney & Barthel, 1965) was also used to establish the degree of independence of the person with AD, the Questionário de Avaliação da Sobrecarga do Cuidador Informal (Martins, Ribeiro & Garrett, 2003) was used to measure the level of burden, and the Brief COPE (Carver, 1997) to measure the coping strategies more frequently used. As for the results, there is a direct correlation between the scale Behavioural Disengagement and the scale Financial Burden, and also with the scale Implications on Personal Life. The coping strategy that the questioned caregivers use more often is Positive Reframing (M= 3.56) and the one used less frequently is Substance Use (M= 1.19). The caregivers that use Positive Reframing more often are the ones that have been caregivers for less time. There are no high levels of burden among the questioned caregivers. In conclusion, the caregivers that have more financial difficulties are the ones that more often give up on trying to improve their situation, and also, the ones whose lives and plans were more altered by the caregiving situation are more prone to giving up on their plans and goals. The caregivers that are so more recently, have less difficulty in coping with the situation, therefore the duration of the caregiving seems to have an important role on the experienced burden.
ABSTRACT: The objective of this study is to know the relationships between the coping strategies the informal caregivers of people with Alzheimer’s Disease use and the level of burden they experience. A sample of 62 caregivers was questioned, 32 were females and 30 were males. The average of ages is 49.89 and SD is 20.25. A social demographic questionnaire was used, the Barthel Index )Mahoney & Barthel, 1965) was also used to establish the degree of independence of the person with AD, the Questionário de Avaliação da Sobrecarga do Cuidador Informal (Martins, Ribeiro & Garrett, 2003) was used to measure the level of burden, and the Brief COPE (Carver, 1997) to measure the coping strategies more frequently used. As for the results, there is a direct correlation between the scale Behavioural Disengagement and the scale Financial Burden, and also with the scale Implications on Personal Life. The coping strategy that the questioned caregivers use more often is Positive Reframing (M= 3.56) and the one used less frequently is Substance Use (M= 1.19). The caregivers that use Positive Reframing more often are the ones that have been caregivers for less time. There are no high levels of burden among the questioned caregivers. In conclusion, the caregivers that have more financial difficulties are the ones that more often give up on trying to improve their situation, and also, the ones whose lives and plans were more altered by the caregiving situation are more prone to giving up on their plans and goals. The caregivers that are so more recently, have less difficulty in coping with the situation, therefore the duration of the caregiving seems to have an important role on the experienced burden.
Description
Keywords
Cuidadores informais Alzheimer Sobrecarga Coping Informal caregivers Alzheimer’s disease Burden Coping