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Cuidadores familiares de crianças com doenças crónicas : o impacto da doença
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Abstract(s)
Introdução: Com base na literatura evidencia-se que, no processo de doença crónica, o cuidador familiar da criança é compreendido como um fator de proteção e auxílio para a mesma, e devido ao impacto da doença, na vida da criança, podem surgir reações positivas de enfrentamento da doença no cuidador. O principal objetivo desta investigação é compreender a adaptação dos cuidadores familiares à doença crónica da criança, avaliando a resiliência, bem-estar espiritual, bem-estar subjetivo e crescimento pós-traumático. Método: A amostra é constituída por 127 participantes (M = 40 anos,26; DP = 7,38), que são, ou foram, cuidadores de crianças com doenças crónicas. Os participantes preencheram um questionário online com os seguintes instrumentos: Escala de Resiliência, o Questionário de Bem-Estar Espiritual, a Escala de Satisfação com a Vida, a Escala de Afeto Positivo e Negativo e o Inventário de Desenvolvimento Pós-Traumático. Resultados: Os resultados evidenciam a manifestação das variáveis supracitadas na população de pais cuidadores de crianças com doenças cronicas e demonstram que o estado civil, internamentos e bem-estar espiritual estão relacionados com resiliência, bem-estar subjetivo, crescimento pós-traumático e resiliência predizem o bem-estar espiritual, o crescimento pós-traumático e o bem-estar espiritual são preditores de bem-estar subjetivo, e o bem-estar subjetivo e espiritual contribuem para o crescimento pós-traumático. Conclusão: Este estudo demonstra que os cuidadores tendem a manifestar ajustamento psicossocial na gestão da situação de doença crónica, percecionando as variáveis psicossociais supracitadas, e possibilita evidências empíricas importantes para a criação de um modelo teórico que explique a relação entre as mesmas.
Introduction: Based on the literature, it is evident that in the process of chronic disease, the family caregiver of the child is understood as a factor of protection and assistance to the child, and due to the impact of the disease on the child's life, positive reactions to confront the disease can arise in the caregiver. The main objective of this research is to understand the adaptation of family caregivers to the chronic disease of the child, assessing the child's resilience, spiritual well-being, subjective well-being and post-traumatic growth. Method: The sample consists of 127 participants (M age = 40;26 SD = 7.38), who are, or were, caregivers of children with chronic diseases. Participants completed an online questionnaire with the following tools: Resilience Scale, the Spiritual Wellbeing Questionnaire, the Life Satisfaction Scale, the Positive and Negative Affect Schedule, and the Posttraumatic Growth Inventory Results: The results show the manifestation of the abovementioned variables in the population of parents caring of children with chronic illnesses and demonstrate that marital status, internments and spiritual well-being are related to resilience, subjective well-being, post-traumatic growth and resilience predict spiritual well-being, post-traumatic growth and spiritual well-being are predictors of subjective well-being, and subjective and spiritual well-being contribute to post-traumatic growth. Conclusion: This study shows that caregivers tend to manifest psychosocial adjustment in the management of the chronic disease situation, perceiving the aforementioned psychosocial variables, and provides important empirical evidence for the creation of a theoretical model that explains the relationship between them.
Introduction: Based on the literature, it is evident that in the process of chronic disease, the family caregiver of the child is understood as a factor of protection and assistance to the child, and due to the impact of the disease on the child's life, positive reactions to confront the disease can arise in the caregiver. The main objective of this research is to understand the adaptation of family caregivers to the chronic disease of the child, assessing the child's resilience, spiritual well-being, subjective well-being and post-traumatic growth. Method: The sample consists of 127 participants (M age = 40;26 SD = 7.38), who are, or were, caregivers of children with chronic diseases. Participants completed an online questionnaire with the following tools: Resilience Scale, the Spiritual Wellbeing Questionnaire, the Life Satisfaction Scale, the Positive and Negative Affect Schedule, and the Posttraumatic Growth Inventory Results: The results show the manifestation of the abovementioned variables in the population of parents caring of children with chronic illnesses and demonstrate that marital status, internments and spiritual well-being are related to resilience, subjective well-being, post-traumatic growth and resilience predict spiritual well-being, post-traumatic growth and spiritual well-being are predictors of subjective well-being, and subjective and spiritual well-being contribute to post-traumatic growth. Conclusion: This study shows that caregivers tend to manifest psychosocial adjustment in the management of the chronic disease situation, perceiving the aforementioned psychosocial variables, and provides important empirical evidence for the creation of a theoretical model that explains the relationship between them.
Description
Dissertação de Mestrado apresentado no ISPA – Instituto Universitário para obtenção de grau de Mestre na especialidade de Psicologia da Saúde
Keywords
Doença crónica pediátrica Cuidador familiar Resiliência Bem-estar espiritual Bem-estar subjetivo Crescimento pós-traumático Pediatric chronic disease Family care Resilience Spiritual well-being Subjective well-being Post-traumatic growth