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Publication
O luto do filho idealizado: Pais da criança com síndrome de Down
Advisor(s)
Abstract(s)
A notícia de um diagnóstico de Síndrome de Down reveste-se de um impacto emocional
significativo para os pais, na medida em que representa a perda do filho perfeito e saudável que
idealizaram.
O presente estudo objetivou investigar as implicações psicológicas da adaptação à
Síndrome de Down e o dia a dia do casal e da família, a partir de uma análise qualitativa do
testemunho de três casais (homem e mulher), pais de uma criança com Síndrome de Down em
idade infantil.
A investigação realizada revelou que as reações parentais ao diagnóstico de Síndrome de
Down foram semelhantes às de um processo de luto (choque, tristeza, raiva e ansiedade) num
percurso gradual de adaptação, geralmente conducente à restituição do equilíbrio emocional e
familiar.
O momento em que o diagnóstico de Síndrome de Down foi conhecido, a forma como,
partindo do testemunho dos pais, este lhes foi comunicado, a reação da família e a rede de apoio
aos pais permitiram sistematizar e estabelecer orientações para a atuação dos profissionais de
saúde, nomeadamente no que respeita à comunicação do diagnóstico e à prestação de cuidados
integrados. Foi ainda retida a necessidade de consciencializar para a relevância das intervenções
psicossociais com estas famílias, no sentido de as ajudar e orientar, no processo de adaptação à
vivência com um filho portador de Síndrome de Down.
ABSTRACT: The news of a Down Sindrome diagnoses is of a significant emotional impact for parents, because it means the loss of the perfect and healthy idealized child. This study aimed to investigate the psychological implications of the adaptation to Down Sindrome and the daily lives of the couple and the family, from a qualitative analysis of the testimony of three couples (man and woman), parents of a child with Down syndrome during childhood. The investigation revealed that parental reactions to the diagnosis of Down Syndrome were similar to those of a grieving process (shock, sadness, anger and anxiety) in a gradual process of adaptation, usually leading to the return of the emotional and family balance. The moment the diagnosis of Down Syndrome was known, and the way how it was delivered, from the parents' testimony, they were communicated, just as the family reaction to Down Syndrome and the network support, allowed parents to systematize and establish guidelines for the work of health professionals, and in particular as regards the communication of the diagnosis and the provision of integrated care. It was also retained the need to raise awareness of the relevance of psychosocial interventions with these families, to help them and guide them throughout the process of adapting to living with a son with Down Syndrome.
ABSTRACT: The news of a Down Sindrome diagnoses is of a significant emotional impact for parents, because it means the loss of the perfect and healthy idealized child. This study aimed to investigate the psychological implications of the adaptation to Down Sindrome and the daily lives of the couple and the family, from a qualitative analysis of the testimony of three couples (man and woman), parents of a child with Down syndrome during childhood. The investigation revealed that parental reactions to the diagnosis of Down Syndrome were similar to those of a grieving process (shock, sadness, anger and anxiety) in a gradual process of adaptation, usually leading to the return of the emotional and family balance. The moment the diagnosis of Down Syndrome was known, and the way how it was delivered, from the parents' testimony, they were communicated, just as the family reaction to Down Syndrome and the network support, allowed parents to systematize and establish guidelines for the work of health professionals, and in particular as regards the communication of the diagnosis and the provision of integrated care. It was also retained the need to raise awareness of the relevance of psychosocial interventions with these families, to help them and guide them throughout the process of adapting to living with a son with Down Syndrome.
Description
Dissertação de mestrado apresentada ao ISPA - Instituto Universitário
Keywords
Filho idealizado Luto Síndrome de Down Idealized son Mourning Down syndrome