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Trajectories of relationship quality in dementia: a longitudinal study in eight European countries

dc.contributor.authorMarques, Maria J.
dc.contributor.authorTan, Eva Y.L.
dc.contributor.authorWoods, Robert
dc.contributor.authorJelley, Hannah
dc.contributor.authorKerpershoek, Liselot
dc.contributor.authorHopper, Louise
dc.contributor.authorIrving, Kate
dc.contributor.authorBieber, Anja
dc.contributor.authorStephan, Astrid
dc.contributor.authorSköldunger, Anders
dc.contributor.authorSjölund, Britt-Marie
dc.contributor.authorSelbaek, Geir
dc.contributor.authorRøsvik, Janne
dc.contributor.authorZanetti, Orazio
dc.contributor.authorPortolani, Daniel Michael
dc.contributor.authorMaroco, J. P.
dc.contributor.authorDe Jong, Marjolein
dc.contributor.authorVerhey, Frans
dc.contributor.authorGonçalves-Pereira, Manuel
dc.date.accessioned2022-01-18T13:10:52Z
dc.date.available2022-01-18T13:10:52Z
dc.date.issued2021
dc.description.abstractObjectives: Relationship quality (RQ) between a person with dementia and a family carer may influence their health and quality of life. However, evidence regarding its course and influencing factors is limited. We aimed to explore RQ trajectories in dementia, and identify predictors of change. Methods: We analysed longitudinal data from a cohort of 350 community-dwelling people with dementia and their informal carers, participating in the Actifcare study in eight European countries. The Positive Affect Index, rated separately by both people with dementia and their carers, assessed RQ. Other measures included the Neuropsychiatric Inventory Questionnaire (regarding persons with dementia), and the Relative Stress Scale, Sense of Coherence Scale and Lubben Social Network Scale (for carers). Trajectories and influencing factors were explored applying a latent growth model (LGM). Results: RQ in the group of carers declined over 1year, but RQ scores for the persons with dementia did not change. Higher stress in carers negatively influenced their baseline RQ ratings. Carer sense of coherence and being a spouse were associated with more positive baseline RQ carer assessments. Higher levels of neuropsychiatric symptoms were linked to decline in carers’ RQ, whereas social support was associated with more positive RQ trajectories. Conclusion: This study provides a valuable insight into the course of RQ. LGM proved useful to explore the factors that influence RQ trajectories and variability within- and between-persons. Our findings emphasise the importance of carer-perceived social support and sense of coherence, and of reducing neuropsychiatric symptoms, in maintaining a good RQ.pt_PT
dc.description.sponsorshipFundação para a Ciência e Tecnologia - FCTpt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationMarques, M. J., Tan, E. Y. L., Woods, B., Jelley, H., Kerpershoek, L., Hopper, L., Irving, K., Bieber, A., Stephan, A., Sköldunger, A., Sjölund, B.-M., Selbaek, G., Røsvik, J., Zanetti, O., Portolani, D. M., Marôco, J., de Vugt, M., Verhey, F., & Gonçalves-Pereira, M. (2021). Trajectories of relationship quality in dementia: a longitudinal study in eight European countries. Aging & Mental Health, 1–9. https://doi.org/10.1080/13607863.2021.1969641pt_PT
dc.identifier.doi10.1080/13607863.2021.1969641pt_PT
dc.identifier.issn13607863
dc.identifier.urihttp://hdl.handle.net/10400.12/8434
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherRoutledgept_PT
dc.relationFCT-PD/BD/128011/2016pt_PT
dc.relationFCTJP ND‐HC/0001/2012pt_PT
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/pt_PT
dc.subjectAlzheimer’s diseasept_PT
dc.subjectFamily caregiverspt_PT
dc.subjectLongitudinal studiespt_PT
dc.subjectSense of coherencept_PT
dc.subjectNeuropsychiatric symptomspt_PT
dc.subjectSocial supportpt_PT
dc.titleTrajectories of relationship quality in dementia: a longitudinal study in eight European countriespt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.conferencePlaceUnited Kingdonpt_PT
oaire.citation.endPage9pt_PT
oaire.citation.startPage1pt_PT
oaire.citation.titleAging & Mental Healthpt_PT
person.familyNameMarques
person.familyNameWoods
person.familyNameJelley
person.familyNameKerpershoek
person.familyNameHopper
person.familyNameIrving
person.familyNameBieber
person.familyNameStephan
person.familyNameSköldunger
person.familyNameSjölund
person.familyNameSelbaek
person.familyNameRøsvik
person.familyNameZanetti
person.familyNamePortolani
person.familyNamePaulo Marôco Domingos
person.familyNamede Jong
person.familyNameVerhey
person.givenNameMaria J.
person.givenNameRobert
person.givenNameHannah
person.givenNameLiselot
person.givenNameLouise
person.givenNamekate
person.givenNameAnja
person.givenNameAstrid
person.givenNameAnders
person.givenNameBritt-Marie
person.givenNameGeir
person.givenNameJanne
person.givenNameOrazio
person.givenNameDaniel
person.givenNameJoão
person.givenNameMarjolein
person.givenNameFrans
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rcaap.rightsrestrictedAccesspt_PT
rcaap.typearticlept_PT
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