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Publication
Desenvolvimento e validação da escala da qualidade da relação entre cuidador informal e doente - antes e depois da doença
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| 1.11 MB | Adobe PDF |
Advisor(s)
Abstract(s)
Com o aparecimento de uma doença no meio familiar, a qualidade da relação entre o
cuidador informal e o doente pode modificar-se em resultado do envolvimento na
prestação de cuidados. Essas mudanças podem ser positivas, criando proximidade entre
ambos, no entanto, também podem ser prováveis causadoras de conflito. Até ao momento,
não existe nenhum instrumento que permita avaliar as alterações na qualidade da relação
do cuidador informal decorrentes da situação de doença. Objetivo: O presente estudo
visa o desenvolvimento e validação da Escala da Qualidade da Relação entre Cuidador
Informal e Doente - Antes e Depois da Doença (EQR). Método: A amostra é composta
por cuidadores de familiares doentes acompanhados em cuidados paliativos. Os dados
foram recolhidos com recurso à EQR. Adicionalmente, foram também administrados um
questionário de caracterização sociodemográfica, e três instrumentos de auto-relato: Brief
Symptom Inventory (BSI); Escala da Sobrecarga do Cuidador; e o Prolonged Grief
Disorder Pre-Death (PG-12). Procedeu-se à realização de uma Análise Fatorial
Exploratória (AFE), que incidiu sobre as duas subescalas da EQR: “Antes da Doença” e
“Depois, na Doença”. Resultados: A amostra foi composta por 139 sujeitos, na sua
maioria do sexo feminino (82.0%) e “filho/a” (56.8%), com média de idades de 51.73
anos (DP 13.40). As duas subescalas da EQR revelaram ter uma estrutura bifatorial,
correspondente às dimensões “Proximidade” e “Conflito”. Os valores de consistência
interna são aceitáveis nas duas subescalas “Antes da Doença” (α= .77) e “Depois, na
Doença” (α= .75). Foi encontrada uma correlação moderada entre o fator conflito da
EQR na versão “Depois, na Doença” e a Escala de Sobrecarga do Cuidador de Zarit; tal
como o fator proximidade da EQR na versão “Depois, na Doença” e o PG-12,
demonstrando evidência de validade convergente. Os resultados demonstraram também
ausência de correlação entre o fator proximidade da EQR e a Escala de Sobrecarga do
Cuidador de Zarit; e o fator conflito da EQR com o PG-12, provando a evidência da
validade divergente. Discussão: A Escala da Qualidade da Relação entre Cuidador
Informal e Doente – Antes e Depois da Doença mostrou ser consistente, válida e fiável,
possibilitando a avaliação de eventuais alterações relacionais advindas da prestação de
cuidados em contexto de doença avançada.
ABSTRACT: With the appearance of an illness in the family environment, the quality of the relationship between the informal caregiver and the patient may change as a result of involvement in the provision of care. These changes can be positive, creating closeness between the two, however, they can also be likely to cause conflict. To date, there is no instrument that allows the assessment of changes in the quality of the informal caregiver relationship resulting from illness. Objective: The present study aims to develop and validate the Quality Scale of the Relationship between Informal Caregiver and Patient - Before and After Illness (EQR). Method: The sample is composed of caregivers of sick family members monitored in palliative care. Data were collected using the EQR. Additionally, a sociodemographic characterization questionnaire and three self-report instruments were administered: Brief Symptom Inventory (BSI); Caregiver Burden Scale; and the Prolonged Grief Disorder Pre-Death (PG-12). An Exploratory Factor Analysis (EFA) was carried out, which focused on the two subscales of the EQR: “Before the Illness” and “After the Illness”. Results: The sample consisted of 139 subjects, mostly female (82.0%) and “Son” (56.8%), with a mean age of 51.73 years (SD 13.40). The two EQR subscales revealed to have a bifactorial structure, corresponding to the dimensions “Closeness” and “Conflict”. Internal consistency values are acceptable in the two subscales “Before the Illness” (α= .77) and “After the Illness” (α= .75). A moderate correlation was found between the conflict factor of the EQR in the “After, in Illness” version and the Zarit Caregiver Burden Scale; such as the closeness factor of the EQR in the “After the Illness” version and the PG-12, demonstrating evidence of convergent validity. The results also showed no correlation between the EQR closeness factor and the Zarit Caregiver Burden Scale; and the conflict factor of the EQR with the PG-12, proving the evidence of divergent validity. Discussion: The Quality Scale of the Relationship between Informal Caregiver and Patient - Before and After Illness proved to be consistent, valid and reliable, enabling the assessment of possible relational changes resulting from the provision of care in the context of advanced illness.
ABSTRACT: With the appearance of an illness in the family environment, the quality of the relationship between the informal caregiver and the patient may change as a result of involvement in the provision of care. These changes can be positive, creating closeness between the two, however, they can also be likely to cause conflict. To date, there is no instrument that allows the assessment of changes in the quality of the informal caregiver relationship resulting from illness. Objective: The present study aims to develop and validate the Quality Scale of the Relationship between Informal Caregiver and Patient - Before and After Illness (EQR). Method: The sample is composed of caregivers of sick family members monitored in palliative care. Data were collected using the EQR. Additionally, a sociodemographic characterization questionnaire and three self-report instruments were administered: Brief Symptom Inventory (BSI); Caregiver Burden Scale; and the Prolonged Grief Disorder Pre-Death (PG-12). An Exploratory Factor Analysis (EFA) was carried out, which focused on the two subscales of the EQR: “Before the Illness” and “After the Illness”. Results: The sample consisted of 139 subjects, mostly female (82.0%) and “Son” (56.8%), with a mean age of 51.73 years (SD 13.40). The two EQR subscales revealed to have a bifactorial structure, corresponding to the dimensions “Closeness” and “Conflict”. Internal consistency values are acceptable in the two subscales “Before the Illness” (α= .77) and “After the Illness” (α= .75). A moderate correlation was found between the conflict factor of the EQR in the “After, in Illness” version and the Zarit Caregiver Burden Scale; such as the closeness factor of the EQR in the “After the Illness” version and the PG-12, demonstrating evidence of convergent validity. The results also showed no correlation between the EQR closeness factor and the Zarit Caregiver Burden Scale; and the conflict factor of the EQR with the PG-12, proving the evidence of divergent validity. Discussion: The Quality Scale of the Relationship between Informal Caregiver and Patient - Before and After Illness proved to be consistent, valid and reliable, enabling the assessment of possible relational changes resulting from the provision of care in the context of advanced illness.
Description
Dissertação de Mestrado realizada sob a orientação da
Professora Doutora Alexandra Coelho, apresentada no
Ispa – Instituto Universitário para obtenção de grau de
Mestre na especialidade de Psicologia Clínica.
Keywords
Validação da Escala Qualidade da Relação Pré-Morte Doentes dos Cuidados Paliativos Cuidador Informal Scale Validation Relationship Quality Pre-Death Palliative Care Patients Informal Caregiver