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Addressing relationship quality of people with dementia and their family carers: Which profiles require most support?

2024Journal article Open access
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dc.contributor.authorMarques, Maria J.
dc.contributor.authorWoods, Bob
dc.contributor.authorJelley, Hannah
dc.contributor.authorKerpershoek, Liselot
dc.contributor.authorHopper, Louise
dc.contributor.authorIrving, Kate
dc.contributor.authorBieber, Anja
dc.contributor.authorStephan, Astrid
dc.contributor.authorSköldunger, Anders
dc.contributor.authorSjölund, Britt‐Marie
dc.contributor.authorSelbaek, Geir
dc.contributor.authorRøsvik, Janne
dc.contributor.authorZanetti, Orazio
dc.contributor.authorPortolani, Daniel Michael
dc.contributor.authorMaroco, J. P.
dc.contributor.authorJanssen, Niels
dc.contributor.authorTan, Eva Y.L.
dc.contributor.authorde Vugt, Marjolein
dc.contributor.authorVerhey, Frans
dc.contributor.authorGonçalves-Pereira, Manuel
dc.date.accessioned2024-11-18T15:53:28Z
dc.date.available2024-11-18T15:53:28Z
dc.date.issued2024
dc.description.abstractObjective: The quality of the relationship between persons with dementia and family carers influences health and quality-of-life outcomes. Little is known regarding those at higher risk of experiencing a decline in relationship quality, who could potentially benefit the most from interventions. We aimed to identify these risk profiles and explore the underlying factors. Methods: We applied a latent profile analysis to relationship quality data from a 1- year follow-up of 350 dyads of persons with dementia and their informal carers from the Actifcare cohort in eight European countries. Assessments included sociodemographic, clinical, functional, psychosocial and quality-of-life measures. Relationship quality was assessed with the Positive Affect Index. A discriminant analysis explored factors influencing the risk profiles. Results: There were two relationship quality profiles among persons with dementia (gradually decreasing, 74.0%; low but improving, 26%) and two among carers (steadily poor, 57.7%; consistently positive, 42.3%). The ‘gradually decreasing’ profile (persons with dementia) was related to their levels of dependence and unmet needs, along with carers’ social distress and negative feelings, lower baseline RQ and sense of coherence. The ‘steadily poor’ profile (carers) was influenced by their social distress and negative feelings, lower sense of coherence and perceived social support. These two predominant profiles showed significant decreases in quality-of-life over one year. Conclusions: Specific profiles of persons with dementia and their carers are at risk of worse relationship quality trajectories. By considering modifiable related factors (e.g., carers’ stress), our findings can help develop tailored, effective interventions.pt_PT
dc.description.sponsorshipFundação para a Ciência e Tecnologia - FCTpt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationMarques, M. J., Gonçalves-Pereira, M., Woods, B., Jelley, H., Kerpershoek, L., Janssen, N., Tan, E. Y. L., de Vugt, M., Verhey, F., Hopper, L., Irving, K., Bieber, A., Stephan, A., Sköldunger, A., Sjölund, B., Selbaek, G., Røsvik, J., Zanetti, O., Portolani, D. M., & Marôco, J. (2024). Addressing relationship quality of people with dementia and their family carers: which profiles require most support? Frontiers in Psychiatry, 15. https://doi.org/10.3389/fpsyt.2024.1394665pt_PT
dc.identifier.doi10.3389/fpsyt.2024.1394665pt_PT
dc.identifier.issn16640640
dc.identifier.urihttp://hdl.handle.net/10400.12/10007
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherFrontiers in Psychologypt_PT
dc.relationFCT-JPND-HC-0001/2012pt_PT
dc.relationJPND/2013/2pt_PT
dc.relationFCT-PD/BD/128011/2016pt_PT
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/pt_PT
dc.subjectAlzheimer’s diseasept_PT
dc.subjectClose relationshipspt_PT
dc.subjectFamily carept_PT
dc.subjectInformal carept_PT
dc.subjectlatent profile analysispt_PT
dc.subjectLongitudinal studypt_PT
dc.subjectLatent profile analysispt_PT
dc.subjectSocial supportpt_PT
dc.subjectQuality-of-lifept_PT
dc.titleAddressing relationship quality of people with dementia and their family carers: Which profiles require most support?pt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.conferencePlaceSwitzerlandpt_PT
oaire.citation.endPage10pt_PT
oaire.citation.startPage1pt_PT
oaire.citation.titleFrontiers in Psychiatrypt_PT
oaire.citation.volume15pt_PT
person.familyNameMarques
person.familyNameJelley
person.familyNameKerpershoek
person.familyNameHopper
person.familyNameIrving
person.familyNameBieber
person.familyNameStephan
person.familyNameSköldunger
person.familyNameSelbaek
person.familyNameRøsvik
person.familyNameZanetti
person.familyNamePortolani
person.familyNamePaulo Marôco Domingos
person.familyNameJanssen
person.familyNameVerhey
person.givenNameMaria J.
person.givenNameHannah
person.givenNameLiselot
person.givenNameLouise
person.givenNamekate
person.givenNameAnja
person.givenNameAstrid
person.givenNameAnders
person.givenNameGeir
person.givenNameJanne
person.givenNameOrazio
person.givenNameDaniel
person.givenNameJoão
person.givenNameNiels
person.givenNameFrans
person.identifierD-4339-2015
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person.identifier.ciencia-idD81B-BE2D-9B43
person.identifier.orcid0000-0001-9214-4180
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person.identifier.orcid0000-0002-9506-2532
person.identifier.orcid0000-0002-5068-918X
person.identifier.orcid0000-0001-8439-2248
person.identifier.orcid0000-0001-6511-8219
person.identifier.orcid0000-0003-2509-3744
person.identifier.orcid0000-0002-5408-0048
person.identifier.orcid0000-0002-8528-1483
person.identifier.orcid0000-0001-9214-5378
person.identifier.orcid0000-0003-2450-1558
person.identifier.orcid0000-0002-8307-8406
person.identifier.ridK-9967-2016
person.identifier.ridD-6928-2017
person.identifier.scopus-author-id7004485869
person.identifier.scopus-author-id56193726900
person.identifier.scopus-author-id6602157617
person.identifier.scopus-author-id7007057244
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
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