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Viver com esclerose lateral amiotrófica - um estudo fenomenológico
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Abstract(s)
O presente estudo tem como objetivo descrever, analisar e compreender a experiência subjetiva da vivência da doença de Esclerose Lateral Amiotrófica (ELA). Na análise que permitiu analisar o fenómeno em causa, foi usado o Método Fenomenológico de Amedeu Giorgi, um método qualitativo e essencialmente descritivo. A metodologia usada neste estudo, insere-se numa investigação qualitativa de natureza fenomenológica, com o objetivo de alcançar uma descrição final com os constituintes essenciais e invariáveis desta experiência. A aplicação deste método permitiu analisar, no presente estudo, de forma criteriosa e intimista, as descrições de cinco participantes, três do sexo masculino e dois do sexo feminino, diagnosticados com ELA, com idades compreendidas entre os 40 e os 81 anos, de forma a melhor compreender como é experienciada a doença, através dos seus “modus vivendi”.
Os resultados encontrados, decorrentes da aplicação do referido método, indicam a perceção de uma vivência que modifica negativamente e abruptamente, a vivência dos indivíduos, quer a nível individual, social, quer familiar, sendo que cada um deles tenta, através dos recursos que possui, adaptar-se à nova realidade.
Constata-se que este fenómeno é bastante complexo e afeta várias dimensões do sujeito, causando perdas irreversíveis, que causam alterações profundas no seu dia a dia.
The present study aims to describe, analyze and understand the subjective experience of the disease of Amyotrophic Lateral Sclerosis (ALS). In the analysis that allowed to analyze the phenomenon in question, Amedeu Giorgi's Phenomenological Method was used, a qualitative and essentially descriptive method. The methodology used in this study is part of a qualitative research of a phenomenological nature, aiming to reach a final description with the essential and invariable constituents of this experience. The application of this method allowed us to analyze in the present study, in a careful and intimate manner, the descriptions of five participants, diagnosed with ALS, three males and two females, aged between 40 and 81 years, of way to better understand how the disease is experienced through its "modus vivendi". The results obtained, due to the application of this method, indicate the perception of an experience that negatively and abruptly modifies the individuals experience, both individually, socially and family, and each of them tries, through the resources they possess , adapt to the new reality. It is observed that this phenomenon is quite complex and affects several dimensions of the subject, causing irreversible losses, that cause profound changes in their day to day.
The present study aims to describe, analyze and understand the subjective experience of the disease of Amyotrophic Lateral Sclerosis (ALS). In the analysis that allowed to analyze the phenomenon in question, Amedeu Giorgi's Phenomenological Method was used, a qualitative and essentially descriptive method. The methodology used in this study is part of a qualitative research of a phenomenological nature, aiming to reach a final description with the essential and invariable constituents of this experience. The application of this method allowed us to analyze in the present study, in a careful and intimate manner, the descriptions of five participants, diagnosed with ALS, three males and two females, aged between 40 and 81 years, of way to better understand how the disease is experienced through its "modus vivendi". The results obtained, due to the application of this method, indicate the perception of an experience that negatively and abruptly modifies the individuals experience, both individually, socially and family, and each of them tries, through the resources they possess , adapt to the new reality. It is observed that this phenomenon is quite complex and affects several dimensions of the subject, causing irreversible losses, that cause profound changes in their day to day.
Description
Dissertação de Mestrado realizada sob a orientação de Vítor Amorim Rodrigues, apresentada no ISPA – Instituto Universitário para obtenção de grau de Mestre na especialidade de Psicologia Clínica
Keywords
Esclerose lateral amiotrófica Doença degenerativa progressiva Perdas irreversíveis Investigação qualitativa Método fenomenológico de Amedeu Giorgi Amyotrophic lateral sclerosis Progressive degenerative disease Irreversible losses Qualitative research Phenomenological method of Amedeu Giorgi