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Publication
“Perdi um órgão mas não perdi a vida” A Qualidade de Vida, o Suporte Social Percebido e o Estigma Percecionado numa amostra de portadores de laringectomia total em Portugal
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| 8.12 MB | Adobe PDF |
Advisor(s)
Abstract(s)
O indivíduo portador de deficiência por laringectomia total sofre consequências
nefastas no seu todo, particularmente no que concerne à sua dimensão psicossocial, vendo o
seu ajustamento comprometido neste âmbito. A literatura científica identifica uma ligação entre
o suporte social e o estigma percecionado com a qualidade de vida do laringectomizado. A
mesma ainda não foi desenvolvida no panorama português. Verificando-se a ligação
significativa entre estas variáveis, torna-se pertinente investigar e explorar as mesmas, tal como
aprofundar o conhecimento acerca da vivência do impacto psicológico da deficiência por
laringectomia. Foram formados três grupos focais de discussão e aplicadas três escalas breves
para descrever os construtos alvo neste estudo. Foi desenvolvido um modelo que utilizou a
técnica da autofotografia terapêutica enquanto facilitadora de testemunhos. Afere-se que o
suporte social percebido tem um impacto positivo na perceção da qualidade de vida,
inversamente a perceção de estigma tem um impacto negativo na perceção da qualidade de
vida. Foi possível identificar fatores de risco e promotores da perceção da qualidade vida, tal
como facilitadores e barreiras no processo de adaptação à realidade da laringectomia. Alguns
dos resultados sustentam a evidência existente acerca da adaptação psicossocial na
laringectomia total e relevam áreas passíveis para futura investigação e prática clínica. Salienta se a necessidade de desenvolver investigações acerca da experiência do portador de
laringectomia total denominadamente investigando o seu crescimento pós-traumático.
ABSTRACT: The person with a disability arising from a total laryngectomy suffers adverse consequences on a whole, particularly in what concerns the psychosocial dimension, compromising their adjustment in this area. Scientific literature identifies a connection between received social support and the stigma perceived by laryngectomized patients as relevant to their quality of life. This link has not yet been explored in the Portuguese context. Given the significant connection between these variables, it becomes relevant to further investigate the degree of interinfluence between them, as well as to study the experience of the psychological impact of disability due to laryngectomy. A model was built using the technique of therapeutic auto photography as a facilitator of testimonies. It was found that perceived social support has a positive impact on perceived quality of life, while perceived stigma has a negative impact on perceived quality of life. It was possible to identify risk factors and promoters of perceived quality of life, as well as facilitators and barriers in the process of adapting to the reality of laryngectomy. Some of the results support the existing evidence on psychosocial adaptation to total laryngectomy and highlight areas for future research and clinical practice. We highlight the need to develop research into the experience of patients with total laryngectomy, namely by investigating their post-traumatic growth.
ABSTRACT: The person with a disability arising from a total laryngectomy suffers adverse consequences on a whole, particularly in what concerns the psychosocial dimension, compromising their adjustment in this area. Scientific literature identifies a connection between received social support and the stigma perceived by laryngectomized patients as relevant to their quality of life. This link has not yet been explored in the Portuguese context. Given the significant connection between these variables, it becomes relevant to further investigate the degree of interinfluence between them, as well as to study the experience of the psychological impact of disability due to laryngectomy. A model was built using the technique of therapeutic auto photography as a facilitator of testimonies. It was found that perceived social support has a positive impact on perceived quality of life, while perceived stigma has a negative impact on perceived quality of life. It was possible to identify risk factors and promoters of perceived quality of life, as well as facilitators and barriers in the process of adapting to the reality of laryngectomy. Some of the results support the existing evidence on psychosocial adaptation to total laryngectomy and highlight areas for future research and clinical practice. We highlight the need to develop research into the experience of patients with total laryngectomy, namely by investigating their post-traumatic growth.
Description
Dissertação de Mestrado realizada sob a
orientação da Professora Doutora Ivone
Patrão, apresentada no Ispa –Instituto
Universitário para obtenção de grau de Mestre na
especialidade de Psicologia da Saúde.
Keywords
Laringectomia Total Qualidade de Vida Suporte Social Estigma Percecionado Metodologia Mista Total Laryngectomy Quality of Life Social Support Perceived Stigma Mixed Methods